Showing posts with label tysabri. Show all posts
Showing posts with label tysabri. Show all posts

Monday, May 11, 2009

no more doctor

Well, today I made myself available to serving my mother. She had a doctors appointment at 11AM and some errands to run before it. I got home from work and got her in the car. Oh, speaking of "THE CAR," my car (smurf mobile) no longer has breaks, so I am done driving it for the summer. I will get them fixed when I get back from Arizona. But, the awesome thing is that my cousin Matt agreed to let me use his car, and he is just using my moms car (i'm not allowed to drive my parents vehicles. . . because of past bad decisions). So, I packed my moms wheel chair in Matt's car, and off we went.She had to stop at Jo'Ann fabric's to get some string or something and to the bank, and some other things. Then we went to the doctors office to have her stitches removed. Wow, they really cut her up good. A serious operation in deed. I hope she won't mind me broadcasting her foot on the internet, but here goes. . .Yeah, the picture does not really needs words. I'll just let you fill in the blank____.

Well, back to work. Today was the 2nd to last day at the YMCA childcare for me. I am gonna miss these darn kids. I love playing with them.Especially this little bugger. Good ole Tony.

When I got home from work for the evening, I found out something that is not so good. I got a letter from the Indiana Center for Multiple Sclerosis saying that they are shutting the doors as of June 1st. :o/ This is going to make things kind of tricky on me, mostly because I not only have to find a new neurologist that will keep me on the TYSABRI, but will also take me as a patient. Tricky Tricky Tricky.

P.S. I HAD MY 15th INFUSION OF TYSABRI TODAY!!!

I thought that was a pretty cool hill to climb over. A hurdle to tackle, ya know? My health is going great, and I am so happy about that. I am not scared about the whole doctor/neurologist thing, because I have no idea who I am going to go to, so basically I have to just turn it over to God in prayer. I will be asking that God provides someone who will take me on as a patient and continue with my TYSABRI.

Also, today was my last BSF. I loved BSF so much this year, and God taught me so much through the journey of Moses and the Israelites. I learned that I am the Israelites. Also, that I am extremely hungry for the knowledge of the Bible and Truth. It is an awesome thing. I have to finish packing tomorrow, and also tomorrow I leave for Indianapolis. At 6:30AM, I leave Indianapolis and start my journey to Arizona!! WHOOP WHOOP!! It is going to be awesome, and God is already doing a lot. I LOVE JESUS!!

Monday, October 20, 2008

Golly Gee, God Gradually Get's Gooder.

Infusion # 8 of Tysabri was today. So far, so GOOD! Today would mark month 8, and my health continues on GOOD AS GOLD (knocking on wood). I wanted to include some video of the infusion process.

Having the actual needle placed into my vein is not a problem. It is that darn tape that is so excruciatingly painful. When the tape comes off, so does all the hair on my hairy arms. OUCH!!! Today was really a blessing at the hospital. I was so hungry, and they brought me out this meal, and it tasted so good. It looked really good too. I could tell the cook actually put some time trying to make it pretty, it looked good, and more importantly, it tasted awesome! I am not going to diss on hospital food any longer after this experience.Now doesn't that look pretty? :-)

Today, after I got my infusion, I met up with Tom (Young Life staff) to talk about a the "talk" I will be giving next Wednesday at club. After speaking with him, I am getting so totally excited about it. It is going to be just awesome. I have no worries, God will use it for whatever his purpose is going to be. I just want to make myself a vessel for him to use. Tom is to the left, and I am sitting to the right.....It is kind of a funny picture of us, because I don't usually have my shirt off, I have gained some weight.

In the evening, I went to BSF. It was such a good time. I get so much out of the talks now, it is very uplifting. I wish I had time to explain things I learned and took from the talk tonight in great detail, but I don't. SO, I am just going to highlight the grand points, and explain in brevity how they are impacting my life.

This last week, we went through (Exodus 6:28-10:29), the first 9 plagues that God sent to the Egyptians. There were some amazingly challenging questions, and insights I took from the talk Jack gave tonight. CQ stands for challenge question(s).

*What will it take to surrender fully to God and abandon all other God's?
~Pharaoh hardened his heart & showed an obvious lack of fear for God.
-Sin has hardened man's heart. It is when I diligently refuse to submit to God that I choose NOT to follow Him.
~I must accept the obvious path God is leading me to. By refusing to do so, I am "diligently refusing to submit to God."
-Courage to do hard things in God's will glorifies Him.
-The longer sinners resist God's will, and refuse his word, the louder he speaks through judgment.

(?)CQ(?) How has God kept me safe?
How or when have I chosen to ignore God or hiw will?

FINAL NOTE:
Satan wants humans to believe that compromising to unGodly things is okay. It is when we compromise, that Satan is able to slowly get rid of the thorny ball, and turn it into a smooth ball, easy to handle. I remember my 5th grade teacher use to tell us that that when we tell lies, there is a ball inside us, that has sharp thorns sticking out of it. Every time we lie, the ball turns a little bit. At first it hurts to lie (regret, guilt, etc.), but after a while, the sharp thorns sticking out get worn off and it becomes very easy and painless. That is how I envision consistent sin, not being given to the lord looking like.

These notes really impact me deeply because of some challenges I have set for myself in my life.

Wednesday, September 17, 2008

It can't be....can it?

This morning we had the kids color pictures and enter them into a contest. I was asked by several children why I wasn’t drawing a picture. I responded, “Well, I don’t know, I guess I can draw a picture.” So I did. Here it is in all its beauteousness.There is my little Mexican Boy. Starting off this morning I had a horrible head ache(first oddity). It was not a normal feeling pain either. I know this pain, and it is the pain before the MonSter attacks. Immediately I told myself, that I mustn’t think like that. It is always best to keep an optimistic point of view. What good does worrying do? So, I go to class and gain insight and humor from my Eng W233 prof. He does such a great job of connecting the class together. I look at the way people watch him when he speaks, and they know he cares for them. Being sincere has such a way to impact people, a beautiful thing really.Well, as soon as class was over I had to go to the little boys room. This is where I started to lose my optimism for just a moment. I had to go to the restroom, it was getting close to being and EMERGENCY. I held my composure though, then when I stood at the toilet..........nothing is happening. I have to go so badly, but my body is locking up on me. I thought I was done having this problem!! I thought this was in the past, that I didn't have to worry about this anymore because of the Tysabri. I think I thought wrong. I prayed over it, and went to Snider to get in some contact work during their lunch times.This is the entrance of the High School that I always go through. I met up with some kids that I am starting to form relationships with, and it made my day to see them. It's all worth it right there, to see a kid have his day brightened just because someone chose specifically to impact him or her. That is what it is all about. Relational ministry is a very real and powerful thing. Quoting scripture and biblical knowledge has it's place, this shouldn't ever be overlooked. BUT, it's the "people aspect" that I thrive on. God is going to do so much through Young Life this year, I can just sense it.



I went back to work, and my head was pounding, and my urine was trickling. BUT, the kids always make me so happy. The "possible" health issues aren't anything big either. The pure fact that I am even mentioning them is more or less because I want to have documented evidence for my Neurologist and my own records. When work got out, I went and saw my cousin Matt. If you are an avid reader, you might remember Matt from this post, ~CLICK ME~ Well, because matt just recently went through some serious drama with his sister and her estranged boy friend/babies' daddy. Well, he got the boot, and is now living in a motel in a place that I can not mention just in case someone is reading.......Anyways, here is matt now.Now if you click on that picture, you might be able to enlarge it and see the war wounds from the accident. He has a gnarly scar that runs right through his right eye. God bless him he is trying hard. I told him, "man we are family, I am going to do everything I can to help you out." He just needs support and love to help keep him out of "THAT LIFESTYLE." I remember praying over him when he was coming in and out of consciousness while in the hospital. I have real love for him, and he is trying so hard to do right. I have to respect that, and do all that I can to help him where he is at. What a great ministry opportunity as well. If you pray, say a prayer for my cousin Matt. That God provides, and that Matt takes in order to better himself.....whatever that may mean.